If your daughter had an incurable disease and you had the choice to keep her alive on machines or let her pass in peace, what would you do? Before you answer, let’s pray you never have to find out. Losing a child is likely the most traumatic event a person could suffer, but to have to choose to let your child die is beyond comprehension. And, yet, that is exactly the situation Steve and Michelle Moon found themselves in.
The Moon’s daughter, five-year-old Julianna, is dying of an incurable neurodegenerative illness called Charcot-Marie-Tooth disease. While Julianna is not on her death bed at the moment, things could turn for the worse at any moment. In fact, according to Fox News, “The muscles that control her breathing are so weak that any germ that comes her way, even just the common cold, could kill her. If she survives, doctors say she will likely end up on a respirator with very little quality of life.”
Julianna’s parents told her what was happening and gave her the option of fighting the illness in the hospital or staying home and “going to heaven”. Her mom documented the heart-rending conversation on her blog which was later posted on Fox News Insider:
Michelle: Julianna, if you get sick again, do you want to go to the hospital again or stay home?
Julianna: Not the hospital.
Michelle: Even if that means that you will go to heaven if you stay home?
Michelle: And you know that mommy and daddy won’t come with you right away? You’ll go by yourself first.
Julianna: Don’t worry. God will take care of me.
Michelle: And if you go to the hospital, it may help you get better and let you come home again and spend more time with us. I need to make sure that you understand that. Hospital may let you have more time with mommy and daddy.
Julianna: I understand.
Michelle: (crying) – I’m sorry, Julianna. I know you don’t like it when I cry. It’s just that I will miss you so much.
Julianna: That’s OK. God will take care of me. He’s in my heart.
If the decision to let their daughter pass were not difficult enough, there is now a debate about whether a five-year-old has the right to choose their own destiny, and the Moons may have to answer to the government for allowing their child to die in peace.